Friday, June 7, 2013

Update on little man

OK again I'm on from the phone and at this point I am trying to catch up on all the blogging i have wanted to do but not had time for.

For those of you that have been following my Sy saga here is an update for you.
We went for a long growth hormone test last week to see what his hormone levels were because the times that they checked it it was so low they couldn't detect it. He wasn't allowed to eat after midnight the night before the test through until it was done,thag was the worst part because he eats nonstop. We got there at 630am and checked in and went to a room on the 7th floor where they put in an IV to draw blood and administer meds. I have to brag and say he didn't cry at all when they stuck him twice to get it started. Yay Sy!  They took 3 tubes of blood and left. Then they started the first Med which was to jump start hormone production. They drew blood every half hour while we were there and at the 1 1/2 hour mark they gave him a ssecond Med,and I cant rremember what it was for. Up j til this point he was doing great. The second Med made him sleepy and he was hungry because it was 1030 and he hadn't eaten yet so he got PISSED. He was finally allowed to eat at 1130 and we got home around 1. Overall he did amazing but it really sucked to hear him screaming and not bbe able to do anything for him.
I got the results from the test the other day and of the 12 blood draws 11 of them were low and ONE was in the grey area so they don't want to start treatment. I get that because once its started his body won't produce it on its own and they want to wait to ssee if he will start making it without treatment first. So we go for the test again in 6mos. In the meantime we go for an MRI later this month and make rounds to all his drs again to see if they can come up with something else. In the first 2yrs of life growth hormone doesn't play a major role and growth is based more off of nutrition than anything. Which is leading the endocrinologist to think there may be more to whatever is going on than just a hormone issue. *sigh* one day one of these drs will figure it out and get it all taken care of. At least that's what I hope will happen.

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