Well, we are finally getting answers....

Its been a little over a year since Sy was put in the hospital for failure to thrive and we are finally getting some answers on what the hell s going on with him.  First theres the low production of growth hormone.  Now I find out that hes got something called alpha 1 antitripsyn disorder.  I'm not entirely sure what that means yet since I haven't really researched it much because I don't want to scare the shit out of myself, but I do know that its better than it could have been but worse than I would have liked for it to have been.  I also know that this is the reason his liver enzymes are never right and why his white cell count is always low.  I'm calling his genetics Dr tomorrow to make an appointment to discuss what this all means in the short and long term.  I'm kind of scared to know the answer but I need to know.  I'll update with what that is when I find out.  He goes to the ped and has therapy tomorrow and his therapy evaluation is tomorrow to see if we are going to increase it or leave it the same.
Now for the scary news.  He had, what we believe was, a small seizure a few nights ago and possibly another one yesterday while he was napping.  Both have been while he was sleeping and he was perfectly fine after other than being hard to wake up.  His ped is scheduling him a test( I think he said an eeg) and sending him to a neuro Dr to be evaluated and see if they can figure out what the hell is going on now.
I have come to realize when it comes to him there will never be an end to visiting Dr's and at the moment there is no cure for what he has going on.  I expect him to have things happen that Dr's may or may not be able to explain right away and that we need to take it one day at a time.  This is all new territory to me and its terrifying some days.  I wasn't expecting to ever get an answer on what was going on with his liver enzymes and when we went to the GI Dr last week and he dropped that in my lap I was so shocked that I didn't know what to ask or what to say.  But in time things will get easier.
Hes walking!!!  He took his first steps about 3ish weeks ago and has taken off and is doing really well with it.  Far better than his therapist expected him to do so soon.

Well, thats all for now.  Its chilly out here and I want to go in the house and sit in my comfy chair and relax a bit.  Tomorrow is going to be a busy day.

As always comments are always welcome and please share my page with our friends <3

Jello Party!!

We had our annual Jello Party last weekend, and it was a BLAST!  We had around 27 kids show up and all but 3 of them got COVERED!  We were supposed to have 33 but a few didnt show up, probably because when they RSVP'd their parent asked what the change of clothes and towel were for and they decided that they didnt want to have their kids covered in jello.  Whatever, better off without those stuck up people.  I bought and made 500 boxes of jello this year which ended up giving me 127 2ltrs and 2 3ltrs full of jello, and those filled my big pool(it probably could have taken more but its been through 7 years of jello parties and I was quite shocked it survived last year well enough to be used again) and my little pool that we usually use for water.  I had the oh so brilliant idea to have water balloons this year so the kids could throw them while we filled the pool because it takes awhile.  Well, plans got messed up and i didnt get a chance to fill any balloons the night before so we were left scrambling to fill as many as possible before the party.  We got about a half a tub(one of those 30 gallon totes) filled before it was time to fill the pool and they lasted about 10 seconds.  Thats when the kids started circling us....waiting...asking questions...slowly closing in on us...i was kind of afraid they were going to attack at one point.  But after shouting a few times for them to back up they all took a few steps back and waited patiently(even though they were all fidgeting and itching to get closer and start).  Once the pool was filled I gave them the rules, dont throw any jello at the cluster of adults, if they are in the slime zone thats on them, but the ones that didnt want to get messy, or werent brave enough to get close were off limits.  The other rule was dont hi

t my dog, hes a Husky and a pain in the ass to wash.  FYI I didnt have him in the house because people were going to be in and out changing and using the bathroom and i didnt want him to get away, and he is a runner.  Anyway, I took y pool pictures and told them to have at it.  They all got to the edge of the pool and were carefully putting their hands in it, like they werent sure if I was serious when I said they could throw it, jump in it, throw each other in it, or whatever else they could think of.  Thats when Bub stepped in the pool, bent over and grabbed 2 hands full of jello and just slung it out to the sides of him, hitting 8 or so kids.  All hell broke loose!  They all jumped in the pool, well as many as the pool could fit, they were pushing and shoving and trying to get jello to throw.  It was amazing, or dare I say, beautiful?  It took about 10 minutes for all that jello to be thrown and just the sludge left in the bottom, but I must say the smiles on the kids faces were totally worth it.  So, I decided that I am going to top myself next year by buying 200 boxes of jello a month for the next year which will give me 1200 boxes of jello, which will give me roughly 600 2ltrs of jello and around 6 large pools!  Thats my goal and I an determined to meet it.  Anyway, I'm going to leave it at that and post some pictures for yall to enjoy.
As always comments are always welcome and please share my page with your friends <3.

End of the year woohoo!!!

(Posting from my phone please ignore mistakes)

Wooooohooooooo!!!!! We finally made it to the end of a very,very,very long school year!!  Today was the boys last day of school and I'm pretty sure I'm more excited about them being out than I ever was when I was in school. Mom, I'm sorry I was always a pain in the ass to get to(and keep in) school.  Its far harder to get kids up and moving, ready, fed and out the door ON TIME than it ever was to go sit in a class all day.
Both boys passed to the next grades, super happy and uber proud. Im going to be working with all 3 of them over the summer to keep them from forgetting stuff, I'm sure they are going to be oh so happy about this.  But for now I'm going to let them enjoy their summer, study free.  We are having our annual jello party this weekend so I've got a lot to do between now and Saturday. So far I've had more RSVP's than ever and there's usually a few that show up who didn't RSVP, and of course the few that do and don't show. At the moment we are expecting somewhere around 30 kids to come, plus adults with them, so roughly 50 people will be at my house Saturday. I can not begin to describe how anxious I am about this. Im not exactly a people person,in case you hadn't gathered that already, and the thought of having to interact with so many people has me on the verge of a panic attack. Of course it doesn't help that the one other adult that was going to be here to help (the kids dad) has to work all of the sudden. Thankfully my wonderful friends and family have stepped in to offer help. Those of you that have offered, thank you a million times over, you have no idea how much this means to me. Well, as much as I hate to cut this short I really need to get my butt in gear now that the kids are in bed and get some laundry folded. I'll post after the party with pics and a run down of how it all went.

As always, comments are always welcome and please share my page with your friends <3

Update on little man

OK again I'm on from the phone and at this point I am trying to catch up on all the blogging i have wanted to do but not had time for.

For those of you that have been following my Sy saga here is an update for you.
We went for a long growth hormone test last week to see what his hormone levels were because the times that they checked it it was so low they couldn't detect it. He wasn't allowed to eat after midnight the night before the test through until it was done,thag was the worst part because he eats nonstop. We got there at 630am and checked in and went to a room on the 7th floor where they put in an IV to draw blood and administer meds. I have to brag and say he didn't cry at all when they stuck him twice to get it started. Yay Sy!  They took 3 tubes of blood and left. Then they started the first Med which was to jump start hormone production. They drew blood every half hour while we were there and at the 1 1/2 hour mark they gave him a ssecond Med,and I cant rremember what it was for. Up j til this point he was doing great. The second Med made him sleepy and he was hungry because it was 1030 and he hadn't eaten yet so he got PISSED. He was finally allowed to eat at 1130 and we got home around 1. Overall he did amazing but it really sucked to hear him screaming and not bbe able to do anything for him.
I got the results from the test the other day and of the 12 blood draws 11 of them were low and ONE was in the grey area so they don't want to start treatment. I get that because once its started his body won't produce it on its own and they want to wait to ssee if he will start making it without treatment first. So we go for the test again in 6mos. In the meantime we go for an MRI later this month and make rounds to all his drs again to see if they can come up with something else. In the first 2yrs of life growth hormone doesn't play a major role and growth is based more off of nutrition than anything. Which is leading the endocrinologist to think there may be more to whatever is going on than just a hormone issue. *sigh* one day one of these drs will figure it out and get it all taken care of. At least that's what I hope will happen.

Things you should.know about little boys

Again,I'm.posting from.my phone. Sorry.

1) Dirt will stick to them. I swear they all have invisible dirt magnets and will find the tiniest speck of dirt.in a pristine room.

2) Their favorite toy will always and fforever be their penis. It starts when they are still in diapers and never ends. Don't believe me?  Look over at your husband/boyfriend/fuck buddy at any random moment he is relaxing. I bet his hand will be on it.

3) Guns and weapons are their second favorite toys. Try as much as you want to to keep them away from it bit they will make a weapon out.of ANYTHING. 

4) They will have an interest in girls at a very going age,even if they don't know why.  Gone are the days of girls having cooties.

5) They can and will climb on anything that you think is dangerous and most likely jump off of it just to watch you have a mini heart attack.

6) Boys will steal your heart and hold it in their grubby little hands ladies. Having a son is totally different than having a daughter. I can't explain why but it is.

7) They are born with an instinct to protect their mommy. It's super sweet and totally cute.

8)  They will do anything to make you proud.

9) Hygiene is not on the top of their priority list.  They simply don't care.
10) They have their own distinct smell. Best I can describe it is a mixture of dirt and candy. Weird.

Having boys is the most rewarding thing any mother can experience. Not to downplay girls because that's special in its own right ans I'll touch on that later. But boys are special to us mommies. Enjoy it ladies, it goes by too fast.

When will.people learn?!

First,please forgive any random periods or double letters,misplaced or odd words.  Im doing this from.my phone and editing is a pain.in the ass.

Now,to.the point of this post.
I live on a fairly busy road. It's the main way into the neighborhood and a decent little stretch of road before you hit the stop sign. There is also a hump.in the road that used to be railroad tracks which have been covered over by asphalt.  When I was a kid(hell.until.I was damn near 20) the tracks were left there to.slow.people.down. Not that any of us really did but there wasn't houses on both sides of the street tthen either. Anyway, since they covered it people fucking fly down the road in attempts to jump the old tracks. This isn't REALLY an issue for me since i have a wall of trees across my front yard,and pretty much everyone that loses control ends up across the street in the neighbors yards, but I do have kids and there is a chance one of these fucktards will eventually end up slamming into one of my trees...or worse.  Around this time last year some numbnut came over the hump,lost control and slammed into the power pole which knocked power out to our house and the court across the street. Then there was the guy who jumped the curb and busted both passenger side tires and still sped away driving on his rims. They found him 2 blocks away with bent rims and pissed off parents.  But the best one yet happened today. I had my front door open and from my chair I can see the corner where most of the fuck ups land. Im eating my oh so healthy dinner of microwave burritos and I hear these 2 morons(they cone flying through here a few times a day) on dirt bikes coning up the road. I looked out the door at the exact right moment and see one fly by and the other one drift over to the other side of the road, lose control and hit the curb. His bike goes up over the curb and he bails because he's heading for the brick sign that's over there. He landed on his side,glasses flew off when he bailed and his bike slams the brick. I damn near choked I laughed so hard. He's almost lost control a few times coming through here and he kept doing it. Common sense would say to slow down(or at the very least learn to control your bike).  But noooooo,he kept doing it and he finally fucked up. I walked out and asked if he was OK, he said he was and his friend came back a minute later laughing at him. He picked up the bike, found his broken glasses and went on his merry way but he was holding his arm so I'm willing to bet he's got at least some nasty bruises. Hopefully he learned his lesson and slows down, but I'm willing to bet I'll see him fly through tomorrow.
I've added a pic of the corner with the hump(not the best pic it was raining) and my wall of trees for your viewing pleasure.

Children are tiny terrorists...and other things

I have come to realize that my kids are just little terrorists, especially in the younger years.  They all seem to think that the adults in their lives will give into any and all demands made.  If they don't get what they want what happens?  This cute little child transforms into this demon spawn right before your eyes!  It's actually pretty amazing how it happens.  Here's an example.

I had to go to the store to pick up what I needed for dinner.  Since it was the middle of the day I only had 2 kids with me, Sy and Kira and I figured it would be far easier to take 2 kids mid day than it would to take 4 kids in the later afternoon.  So I packed us all into the car and we set off for the store.  On the way there I gave my usual speech.  "I expect you to be on your best behavior.  No running around or wondering off, you need to stay with me.  Don't ask for anything, the answer is no, no matter what it is you are asking me to buy.  Understand?"  From the back of the van I hear "Yes I understand."  Great!  Maybe this won't be nearly as bad as I am expecting it to me.  HA!  We pull into a parking spot and I open the van door and in my best mommy voice "Remember what I said."  She nods her head as she jumps out and we get Sy and head in.  Everything was going great until we got to the cereal aisle.

"Mommy, can we get this?  It's my favorite!"

"Didn't I tell you not to ask me for anything?"

"Yes but....."
"No buts.  No we aren't getting that, I have 12 boxes of cereal at home already and I'm not buying any more until those are gone."(Yes I actually had 12 boxes of cereal at home, I buy on sale with coupons and stock up on them since they can eat an entire box in like 2 days.)

"But..."
"NO!"

·         At this point she's mad. This is when the transformation happened.  She was being so good up to this point, now I have a little demon spawn on my hands.  Any seasoned mom can tell you they KNOW when this change happens.  She started to frown, then she looked down at the floor and crossed her arms.  She knows better than to start screaming and yelling because that will earn her a swift smack on the ass, but you can see that she is seriously contemplating it.  I mean at this point she knows she's already in trouble and you can almost see her weighing the options in her head.  I stood there waiting on her to stop pouting, I have all the time in the world and she's not going to stand there long, she never does.  When she finally decides to stop staring at the floor she looks up and her brows are drawn, a scowl on her face and giving me a look that said "Bitch you will pay for this."  I know that look all too well, not only do I see it on a regular basis, but I have been known to give the same one more than a few times.   Ask my mom, I was a pro at that look when I was a kid.  Knowing that this shopping trip had gone to hell I grabbed her hand and set off to finish getting what I needed so we could get out of there as quickly as possible.  She was resistant and complained about how fast I was walking and that her legs were tired, she was tired, she wanted something to drink, and pretty much every other thing she could think of.  As we reached the back of the store she saw the lunchables, now I will usually pick one up for whichever kid is with me, provided they haven't been a pain in the ass.  She decided to take it upon herself to walk over to them and pick one out!  Um....no.  I took it out of the cart and put it back and told her she wasn't getting one because she wasn't behaving like she was supposed to and that I don't reward ugly behavior.  Well, that pissed her off!  She stomped her foot and demanded that I get her one.  HAHAHA!  That wasn't going to happen.  But now I had a problem.  I could stand there and try to reason with her, I could leave everything where it was and walk out, or I could bust her butt and adjust her attitude and finish my shopping.  As you all know I do spank my kids, but I rarely do it in public for fear that some nosey person is going to call the cops on me for disciplining my kids in a way that they don't agree with, so that option is only used as a last resort.  I knew this wasn't going to be pretty but I didn't think it was time to use my last resort yet.  I didn't want to be rude and leave a basket full of groceries there for some poor should to have to restock them all, so I opted to try reasoning. 

"You need to stop acting like that and behave before you get into some serious trouble."

"I want a lunchable."

"I'm sorry you want a lunchable but you aren't getting one, I wanted you to behave but I didn't get what I so you aren't getting what you want."

"But I want..."

"Kira I said no, now let's go."

She stood there glaring at me, daring me to do something.  I hate it when my kids do that shit.  It's like they know they are embarrassing me and don't care.  I mean I know they don't care, they are kids, but it's nice to think that they might.  I grabbed her by her upper arm and escorted her to the front of the store, forgetting that I still needed to get butter and milk, and got in line.  She was crying by this point, kind of making a scene, and the longer she went on the madder I was getting.  I can usually ignore her outbursts at home, I send her to her room to calm herself down(and for me to calm down) and then I go in and handle it however I need to.  While we were standing in line she had the nerve to ask me if she could get gum!  As wrong as it is, I laughed and told her no.  I didn't give her an explanation, I just said no and left it at that.  Five minutes later we were in the car an on the way home.  She was still pissed and sniffling in the backseat and I was pissed.  I sent her to her room as soon as we got home as punishment and went in and talked to her about a half hour later. 

This is what I am talking about, they will do whatever they have to, to attempt to get what they want.  Tiny terrorists.  Don't ever take no for an answer, have no mercy and will make the most insane demands.  I have to negotiate with at least one child a day.  Ten years ago I would have laughed at the thought of having to debate with a five year old.  I always swore my kids wouldn't be like that.  I knew that my kids wouldn't be the terrors in the store that everyone would stare at and judge my parenting.  Now that I have four kids I know that it's not always the parenting, it's the kid being a kid.  I discipline my kids, and for the most part they are very well behaved, especially when mom isn't around, but they have their moments when they decide to defy me and act like they don't have brains between their ears.  They want to see exactly how much they can get away with and how far they can push me.  They do the same thing over and over expecting a different outcome, which isn't always the brightest idea.  I have never given in to their demands so I'm not sure why they think that imp going to now, but they all try it from time to time.  I think their goal is to see if they can actually make me pull my hair out.  Bub is way better than he was before, probably because after nine years of trying he's finally realized that I am not going to give in.  Kaden is getting better, he's a whiner and he does it because he knows it drives me insane.  Kira is by far the worst of them, she has a stubborn streak in her that would drive a preacher to cuss.  I'm quite curious to see how Sy will be, I have hopes that he will see how it doesn't work for eh older 3 and not even bother to try.  Yeah, I know, not a chance in hell.  But I have to have hope.  It's all I've got some days. 

Onto other things.  I dyed my hair not too long ago.  I was going for a crimson red and ended up with a bubble gum pink on top that fades into a crimson red on the bottom.  Not the look I was going for, but I'm rocking it anyway.  I had to strip all the color out of my hair before I could try to do the red since I have been dying it black for the past 2 years and black is a really hard color to cover, the stripping went OK....I saw my natural color for the first time in 13 years, which is blond, and remembered why I started dying my hair to begin with.  What sucked was that the color on the bottom didn't strip out as well as it did on top and that's how I ended up with pink hair.  I think I'm going to keep it this way for awhile and maybe do a purple or a blue next time.  Fuck it, if I'm going to do it I may as well stand out right?  I won't be able to pull it off for much longer, I'm getting way too close to 30 to be rocking loud ass colors. 

Both my older boys are in baseball this season.  Bub is loving it and doing amazing for his first year.  Kaden hates it because it isn't real baseball so he's usually off in his own little world when he's out on the field.  I find this slightly amusing since Bub didn't want to play baseball at all and Kaden REALLY wanted to.  Now Bub is talking about wanting to play in the fall and Kaden is saying he wants to play soccer.  I love that they want to play sports, but as it stands right now they have practice Monday through Thursday on alternating days and either a game or practice on Saturdays.  If Kaden decides to play soccer that means 2 different places for practice and games and with my luck they will have practice at the same time on the same day.  But whatever, as long as they are happy that's all that matters right?

A little update on Sy since I haven't give y'all one in awhile.  We went to the ped for his 9 month appointment and he was 15lbs 5.5oz and doing good with his growth, he was FINALLY on the chart for his height for weight! Then we went to the GI Dr 3 days later and he was  15lbs 2oz.  He lost weight UGH!!  Now, here's the problem with the weight loss.  He is weighed at his ped without a diaper on and with it on at the GI Dr.  So there should have been a weight GAIN with a diaper on, even if it was just the weight of the diaper.  I wasn't expecting that shit at all.  He's always had a hard time gaining weight but he's never lost weight before.  This opens up a whole new world of shit.  But for the moment they are waiting to do anything else until he goes to endo.  He's got a weight check soon and if he's lost more weight that will change things, but I am hoping that he's gained.  If not gained I hope that he's at least stayed the same.  He started therapy a few weeks ago.  He's got fine and gross motor delays and a speech delay so we are working on that.  I have seen a HUGE difference in what he can do since he started.  He can now sit himself up from laying down, and he pulled up on his own today for the first time without help!!!  I cannot tell you how proud of him I am!  He's also started waving bye bye and is attempting to clap.  I know these things don't sound like much but for him it's pretty huge since he was so delayed a few weeks ago.  He's still got quite a way to go before he's where he should be but it's a start.  I expected him to have delays from the beginning because of all the issues he's had, so when they told me that he was behind it wasn't a shock.  But I didn't expect him to be as behind as he was.  With all the weight issues he was having he was malnourished, which is bad for babies and kids because it can stunt development.  His speech is still really delayed, but he's now babbling way more than he was before.  He says mama and dada but neither one have any meaning.  By now he should be saying more than one syllable "words" and have at least two words with meaning.  He's getting there though. 

Well my loves, it's getting late and I need to attempt to get some sleep, I've had a hard time sleeping lately for some reason.  As always comments are always welcome and please share my page with your friends <3